Patient involvement
Representation and Networks The Netherlands has a long tradition of professional patient representation and a well-organized network of patient organizations. Patient involvement in the development of therapies is important to ensure that therapies meet real-world needs. For patients, there are several organizations that can be the place to ask questions, understand the research process and explore opportunities to contribute to the development of new therapies. Participation in Therapy Development Patient involvement in the development of therapies is important to ensure that therapies meet real-world needs. As a researcher, finding your way towards meaningful patient involvement for your project can be challenging. However, many patient organizations specialize in connecting researchers with the appropriate patient partners. These organizations often provide valuable guidance and can help researchers to find a patient (representative) whose experiences align with the goals of the study. Training Patient Representatives Are you a patient representative interested in drug development? Do you want to develop the right knowledge to become an effective contributor in this process, strengthening the role of the patient? If so, you might be interested in the e-learning modules , ‘From Molecule to Medicine,’ developed INVOLV. (in Dutch)
| Topic | Replies | Views | Activity | |
|---|---|---|---|---|
| Useful links about patient involvement |
|
0 | 65 | June 25, 2024 |
| Patiëntenparticipatie voor onderzoekers | INVOLV |
|
0 | 3 | April 11, 2025 |
| Patient involvement in therapy development |
|
1 | 18 | February 19, 2025 |
| Meaningful patient participation |
|
0 | 17 | August 30, 2024 |