|
Useful links about rare diseases
|
|
1
|
71
|
November 18, 2024
|
|
Valuable recommendations on drug development for rare diseases [review feb 2026]
|
|
0
|
92
|
February 27, 2026
|
|
RARE-NL AON meeting @LUMC March 11
|
|
0
|
35
|
February 5, 2026
|
|
Symposium Comité Weesgeneesmiddelen
|
|
0
|
29
|
January 23, 2026
|
|
Regulatory sandboxes: A new frontier for rare disease therapies (IRDiRC Publication )
|
|
0
|
46
|
October 23, 2025
|
|
N-of-1 therapy development
|
|
8
|
185
|
August 6, 2025
|
|
World Orphan Drug Congress 2025 | event
|
|
0
|
35
|
July 15, 2025
|
|
Webinar: “Clinical Trials in Focus: Innovations and Patient Perspectives in Rare Diseases”
|
|
0
|
34
|
February 24, 2025
|
|
Is the drug that I want to prescribe reimbursed?
|
|
1
|
70
|
February 18, 2025
|
|
Patient recorded outcome measurements (PROMs) for rare diseases
|
|
1
|
51
|
February 13, 2025
|
|
Orphan Drug designation
|
|
2
|
73
|
February 6, 2025
|
|
Patientregistries on rare disease
|
|
4
|
55
|
February 4, 2025
|
|
Difference Orphan designation and marketing authorisation
|
|
1
|
125
|
February 4, 2025
|
|
Financiering voor onderzoek naar gepast gebruik / Funding for research on optimizing medication use
|
|
1
|
63
|
January 28, 2025
|
|
Open Academy Schools | EURODIS
|
|
0
|
33
|
January 27, 2025
|
|
Rare2025 | Vienna, Austria
|
|
0
|
50
|
January 24, 2025
|
|
Nationale Conferentie Zeldzame Aandoeningen 2025 | VSOP & NFU
|
|
0
|
38
|
January 17, 2025
|
|
Zeldzameziektendag NL
|
|
0
|
29
|
January 10, 2025
|
|
FDA-NIH Rare disease day, USA - February 27-28
|
|
0
|
30
|
January 7, 2025
|
|
Non-coverage of medication for a rare disease
|
|
0
|
40
|
November 1, 2024
|
|
RE(ACT) Congress
|
|
0
|
35
|
October 10, 2024
|